The COVID-19 pandemic highlights the importance of cooperation among healthcare actors and stakeholders at different levels, and that patients and their communities must be equally valued as stakeholders when considering health research and the innovation process. The MULTI-ACT project has created an innovative multi-stakeholder solution of mission-oriented collective sustainability. The solution comprises a new governance model, reporting tools and patient engagement guidelines for the involvement of patients in the research continuum. This model works to allow the effective cooperation of all relevant stakeholders and will be applicable in defining the scope of health research as well as new metrics for the evaluation of its results. In the context of the COVID-19 pandemic, the MULTI-ACT solutions show how healthcare challenges can be better addressed through the application of a more inclusive multi-stakeholder framework with the right governance structure. In this webinar we will explore the MULTI-ACT experience and the profound effect that the COVID-19 crisis is destined to leave in relation to the recognition and role of organisations supporting Responsible Research and Innovation and operating in the collective interest.
Date & Time
Friday, July 10, 2020 at 12.30PM CEST
Paola Zaratin, PhD, joined the Italian MS Society (AISM) on February 2010 where she currently holds the position of Director of Scientific Research on Programs in Multiple Sclerosis Biomedical Research, Research in Public Health, Research in Rehabilitation, Communication in Scientific Research and Patients Engagement in Research. Paola has deep experience in Neuroscience research and in Drug Discovery and Development, acquired in Public, Private sectors and Patients’ Organizations and in the last twenty years in the field of Multiple Sclerosis. Paola has experience in leading national and international multidisciplinary and multi-stakeholder teams and developing collaborative networks in Public, Profit and non Profit sectors. She’s the coordinator (2018-2021) of the EU Responsible Research Innovation H2020 MULTI-ACT project; co-chair of the Scientific Steering Committee (2019) of the global Patient Reported Outcomes Initiative for Multiple Sclerosis; member of the Scientific Steering Committee (2012) and of the Industry Forum (2014) of Progressive Multiple Sclerosis Alliance.
The webinar is free and open to the public. The system used is Zoom.