Making IT Work for Health
Background and objectives
SHARE (“Supporting and structuring Healthgrid Activities and Research in Europe: developing a roadmap”), was a FP6 project that began on 1 January 2006 and ended on 31 March 2008. SHARE has sought to develop a roadmap for the developments (technological and otherwise) necessary for a successful take-up of HealthGrids in the next 10 years. Grids refer to a type of super-computing that enables computers to use the computing capacity, the data, or the knowledge of other computers at a distance.
The concept behind the SHARE project is that there is a large amount of medical data and IT resources distributed in different countries that could be potentially shared for health gain. This would enable interdisciplinary research at the crossroads of medical informatics, bioinformatics and system biology, impacting healthcare. It would also allow access to many different sources of medical data, usually geographically distributed, and make available computer-based tools that can extract the knowledge from these data. Action on Grids for health is also needed at an EU level to address mobility of citizens and provide cross-frontier interoperability of data, cross-frontier infrastructures, best exploitation of resources (both technical and medical).
The SHARE project was led by the Centre National de Recherche Scientifique (France), and comprised a total of seven partners:
- Centre National de la Recherche Scientifique (France)
- HealthGrid (France)
- Universidad Politécnica de Valencia (Spain)
- University of the West of England, Bristol (United Kingdom)
- Facultés Universitaires Notre-Dame de la Paix (Belgium)
- European Health Management Association (Belgium)
- Academia Sinica Grid Computing (Taiwan)
Activities carried out by EHMA
EHMA led work package #4 on the legal, ethical and socio-economic aspects of these emerging technologies. This package fed into the process of developing the readmap through both its iterations, both by adding to technological documents produced by the other work packages and by participating in the testing of the use case scenarios. The partners in the work package were the Facultés Universitaires Notre-Dame de la Paix (Belgium), the University of the West of England, Bristol (United Kingdom), and a sub-contract to Empirica (Germany).
EHMA also participated in the dissemination of the results, including a workshop on SHARE project into the Annual Conference held in Lyon in 2007. EHMA’s tasks were mostly carried out during 2006 and first part of 2007, though the final version of the document was finished in the second half of the year.